Nazanin Andalibi, Ph.D.

We are conducting a paid interview study to explore the role technology plays in the lives of people with endometriosis. If you are interested and willing to participate in this study, first, thank you; and second, we ask that you fill out a screening survey. This survey’s goal is to help us find eligible participants for an interview study. Unfortunately, at this time the study is limited to individuals in the United States. 

 

Here is the survey to indicate your interest. 

 

This screening survey will take 2-5 minutes to complete. If you are invited for the interview study, we would like to have a conversation with you about your endometriosis and technology use/non-use via a video call. This interview will take 60-90 minutes. We will offer a $100 gift card for participating in the interview study and helping us. 

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Information about the interview study

Project Title: Technology’s role in endometriosis management

Principal Investigator: Nazanin Andalibi, PhD, School of Information, University of Michigan

 

In order to participate, you must: a) believe you live with endometriosis; b) speak English fluently; c) live in the US, and d) be over the age of 18.

 

Things you should know:

The purpose of the study is to understand your reflections on and experiences with technology use/non-use in relation to endometriosis.

If you choose to and are eligible to participate, you will be asked to complete an individual interview that will be recorded and transcribed.

The interview will occur over a video call.

Only audio will be recorded and you will choose if you would like to have your video on or off during the call.

The interview will take 60-90 minutes.

There are no obvious physical, legal, financial, or economic risks associated with participating in this study.

There are no direct tangible benefits to participating in this study. However, your participation will help us build a foundational understanding of technology’s role in living with endometriosis.

Taking part in this research project is voluntary. You do not have to participate and you may stop at any time with no penalty.

 

What is the study about and why are we doing it?

Endometriosis is an illness that presents differently for different people, and often takes a long time to diagnose. This study’s goal is to understand the experiences of individuals living with confirmed or suspected endometriosis as it relates to various technologies. In doing so, we hope to be able to provide ways we can better support endometriosis management with and without technology.

 

What will happen if you take part in this study?

If you agree to take part in this study, you will be asked to complete an individual interview that will be recorded. The interview will be on a video call.How could I benefit from this study? There are no direct tangible benefits to participating in this study. However, your participation will help us understand technology’s role in living with endometriosis.

 

What risks might result from being in this study?

There are no obvious physical, legal, financial, or economic risks associated with participating in this study.

 

How will we protect your information?

We plan to publish the results of this study. To protect your privacy, we will not include any information that could identify you in any way in reports or publications resulting from this study. Otherwise, to minimize the risk of breach of confidentiality, all participants and their data (e.g., used clinic names) will be given pseudonyms or participant numbers for recording and reporting purposes. Moreover, only the research team and transcribers who are bound to a confidentiality agreement will have access to the conversations. The recording of the interview and subsequent transcription will be kept on a secure U of M server. Data collected in this study will be retained for potential comparative research studies. A summary of the study’s results will be made available to you upon request.

 

What will happen to the information we collect about you after the study is over?

We will keep the interview data. We will discard the screening survey responses once interview data collection is complete.

 

How will we compensate you for being part of the study?

Upon your completion of this interview study, you will receive a $100 gift card as a token of appreciation for your time and sharing your experience with us.

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What are the costs to you to be part of the study?

Participation in this research study is at no cost to you. Your Participation in this Study is Voluntary. Participating in this study is entirely your decision. Participating in this study is voluntary. Even if you decide to be part of the study now, you may change your mind and pause or end the interview at any time. You do not need to answer any questions that you do not wish to answer.

 

Contact Information for the Study Team and Questions about the Research

If you have questions about this research, you may contact Nazanin Andalibi, PhD Assistant Professor School of Information, University of Michigan.

 

Email: andalibi [at] umich.edu

 

The University of Michigan Health Sciences and Behavioral Sciences Institutional Review Board has determined that this research is exempt from IRB oversight. ID #: HUM00259838